Positives of living with diabetes

I get very sad reading so often about the possible long term detrimental effects of diabetes, as well as the everyday things that can – if we let them – bug us and get us down.

Am posting this as it’s one of the most wonderful, life affirming statements I’ve found online and I hope that others will grab these positives and hang on to them throughout their lives with diabetes! 💙☺️💙

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#DUKPC Professionals ✨Wishin’ & Hopin’✨ 

Have you ever wondered what would make the job of diabetes professionals easier, more fulfilling, help them achieve better results, or just make their lives more comfortable?  Or more fun?  Yes, me too – here’s a selection from the wish lists of some who attended the Diabetes UK Professionals’ Conference in Manchester this year!

“I wish every person with diabetes who wanted to see a psychologist (and equivalents) could access one. It baffles me why this isn’t already the case, given that the every decision to engage in self-care starts and ends with a person’s thoughts and feelings….PWD have access to every other member of the MDT….psychological skills are the missing pieces of the self-management jigsaw.” Dr Jen Nash, Clinical Psychologist, living with type 1 and recovered emotional eater  

“I wish that reimbursement for diabetes technology for those with type 1 in the U.K. was more freely available and that there was more focus on type 1, giving patients more choice.” Karen Baxter, UK Manager, Dexcom 

“I wish I could help those who want just one day’s break from living with diabetes 24/7.” Mark Evans, University Lecturer & Honorary Consultant Physician, Cambridge (@MEvansCambridge)

“I wish more people with diabetes had access to psychological and emotional support – people need to realise that diabetes is not easy to live with and these things are as important as the latest medicines or kit.” Simon O’Neill, Director of Health Intelligence and Professional Liaison, Diabetes UK (@simoneill)

“I wish everyone with type 1 diabetes could be seen by a team specialising in type 1 diabetes.” James Shaw, Professor of Regenerative Medicine for Diabetes & Hon Consultant Physician, Newcastle (@nucDIABETES) 

“I wish that we could genuinely have an honest debate about where the NHS is heading without political dogma or evangelism.” Dr Partha Kar, Consultant Endocrinologist, Portsmouth Hospitals NHS Trust & Associate Clinical Director for Diabetes, NHS England (@parthaskar)

“I wish that people with diabetes wouldn’t go it alone – they should ask for help (from peers, family or healthcare professionals.” Dr Sophie Harris, Innovation Fellow & Honorary Diabetes Registrar, Health Innovation Network (@sophiehampon)

“My wish is for our staff room to be filled with rescue puppies for a fun-filled break!” Laura Cleverly, Staff Nurse (@ninjabetic).    NOTE: After much jest with Laura on Twitter post publication of this, I’d like to remind folk of the well recognised benefits of animal companions for people of all ages and backgrounds, indeed some hospitals use them to improve patients’ emotional health and wellbeing, so a great idea Laura and thanks for your contribution! 🐶

“I wish hospital Trusts would fund more diabetes specilalist dietician posts.” Julie Taplin, Chair, British Dietetics Assn Specialists Group 

“I wish those stopping or never starting a medication that’s actually been prescribed for them would be completely open with their doctors – this makes consultations so much easier and helps build a good relationship.” Philip Newland-Jones, Consultant Pharmacist in Diabetes & Endochrinology, Southampton (@PNewlandJones)

“I wish I had more time and opportunity to hear the views and experiences of the widest possible cross section of people living with or affected by diabetes or the risk of diabetes. And if I’m allowed a second – that we could fund more superb research projects than we can currently afford to!” Chris Askew, Chief Executive, Diabetes U.K. (@ChrisAskewCE)

And finally, having thought about what might make my volunteering role better…. I wish all people diagnosed with any type of diabetes could see the benefits of attending self management courses, connecting with peers and getting inspired to take control of and embrace their diabetes as an integral part of who they are, without it taking over but just being a part of themselves they love, cherish and care for 💙. Lis Warren, Jurassic Type 1 (i.e. living with it for 52 years) and manic diabetes campaigner. 

Radio Harrow broadcast

Harrow Radio broadcast an hour-long programme in October 2016 featuring 4 local people who have type 1 diabetes including (L-R) their presenter Pierre Petrou, James Byers, myself and Matt Pulford.  Not quite a blog, but it was great fun taking part and fascinating to hear how we each manage and see things things differently….  In January 2017 the programme was shortlisted for an award – results to be announced in March 😀🤞

Have a listen here! img_3437

A day in the life

5am     Got up for the loo.  Arghh, noticed my continuous blood glucose monitor (CGM, which is integrated with my insulin pump) is reading 14mmol and has been at that level for 2-3 hours.  Aching and exhausted – suspect a virus is cause of unexpected high, which can signal an infection (or one coming – it’s like having a crystal ball!).  Press buttons for a quick infusion of 0.7ml insulin to nudge number down.  (My pump corrections calculator suggests more, but am trying to stay above 4mmol to regain awareness of low blood sugars (hypos), so err on the safe side.) Continue reading A day in the life